I also had the pleasure (or discomfort...it's a matter of perspective) of a visit to Dr. She Who Will Not Be Named today. She looked at me rather puzzled as to why I was in her office...I considered the odds of getting her to change my diagnosis from Multiple Sclerosis to...oh, I don't know...maybe a benign brain tumor, but then her memory snapped back into place (it really should worry me that my neurologist has to ASK me why I am in her office!). It was my first Novantrone infusion follow up...she remembered after all.
I seemed to have passed my neuro exam without much cheating on my part...I DO study for these events...always trying to master new ways of keeping my EDSS score (Expanded Disability Status Scale) on the low side! LOL In my dealings with Dr. SWWNBN, I find it is best to "control" the amount of information/data I provide for her...lest she suggest bright ideas I have no intention of carrying out...for example STEROIDS or NEW MEDICATIONS!
I believe after our first year of working together, Dr. SWWNBN has learned she must suggest things to me in a manner which, I then in turn, believe her suggestion was MY idea. She told me today she "knew better than to suggest Solumedrol" for my current complaints/concerns/annoyances. I strongly agreed. After my last go round with the potent steroid, I have taken a vow of "steroid celibacy"...refusing to consent to the drug unless under drastic circumstance...such as blindness, total paralysis, or any near death experiences! LOL AND, my current set of complaints simply do not rate high enough on my discomfort scale at this time to warrant consideration of a "drastic circumstance".
I have found myself once again settling into that horrible place of fatigue. Having had a recent burst of energy following my Novantrone dose, I was reminded what my energy level USED to be...and, I must say, I rather miss my more "peppy" side. Dr. SWWNBN and I bantered over the idea of taking Amantidine or Provigil for my fatigue. I reminded her I still have a full bottle of 100 Amantidine (which I never took after filling the script!) from my previous neurologist and I simply wasn't "keen" on the idea of more medication. She skillfully (and I now believe somewhat manipulatively, too) argued the benefit of the drug versus side effects, placed me in her neurologist hypnotic trance, and I walked out agreeing to TRY the dayum drug for at least a week! Fortunately, the effects of her mesmerizing spell have worn off throughout the day, and I am once again leaning toward NOT adding another pill to my mix...especially right now during one of the busiest times in work life. We'll see...(But I doubt it...Mum's the word!)
So, I am off to bed soon (which translates into "sometime in the next 6-10 hours") to try to get some rest with the help of my friends, Xanax and Klonopin...I have not been sleeping well at all, and this only adds to my already fatigued feeling. I have a very busy and extremely LONG work week ahead of me. (And by the way, if I work MORE than 7 days in a row, can this really be called a "work week"? Feedback please...LOL)
For those of you that I have been remiss in leaving comments on YOUR blogs, please know you are definitely being "watched" by me (AKA, I am reading your posts)...I don't know if this should comfort or alarm you...LOL...