I had a very "interesting" voice message left on my cell phone, which I picked up shortly after my first IV Solumedrol infusion today. It was the voice of a dear friend singing (a bit off key mind you) the following words to the tune of Willie Nelson's "On the Road Again": On the Roids again...just can't wait to get on the Roids again. Half my life is sharing steroids with my friends and I can't wait to get on the Roids again. All I can say is, at least I'M not the one who's psychotic yet!
Today's infusion went fairly well actually. Aside from the "dropsy" I feel during the infusion and afterward and the taste perversion (one I like to graphically describe as feeling like a dog has taken a crap in my mouth), it went pretty well. I prophylactically started the psychiatric medications today "just in case" and have spent much of the day just relaxing and watching TV while I can. Usually by the 3rd day, I am unable to focus or concentrate on anything and spend most of my agitated time pacing.
I've got a Heparin lock dangling from my arm covered with a stocking mesh, which does pose a bathing problem, but nothing a bit of Saran Wrap and tape can't accommodate. I tend to prefer to leave my catheter indwelling so as not to be stuck 3 different times by three different nurses with three different skill levels...it just saves me AND them the stress of restarting it.
All in all the day was fairly eventless. I have to say one of the side effects I DO enjoy is the extreme visual clarity that sets in about a half and hour after the infusion starts. Colors become so much more intense and light seems to be brighter. I can only imagine this must be a somewhat similar experience to watching Walt Disney's Fantasia while on acid...so I've heard anyway through the Timothy Leary research. LOL
Unfortunately, I did discover tonight my blood sugar is creeping up a bit high because of the steroid side effect...it's always something! So I will have to cautiously monitor my intake and probably cut out all sweets until I get through this weekend. If THAT doesn't make me psychotic, I don't know what will!
I know this will get posted as a Saturday blog, but understand it's already past 12:30 AM Saturday morning here...that's still Friday night to me. I'm hoping Friday night doesn't turn into Friday night Saturday day...it does certainly make navigating Steroid Road a bit more difficult without any sleep!
Puttin' the pedal to the metal and cruising the highway...